Democratizing Science & Medicine

What is “democracy” and what does it have to do with “doing science” or “practicing medicine”?

The emergence of advanced digital technologies is a feature of our minds, bodies, and world that could facilitate the democratic distribution of opportunities. Opportunities, not the least of which include things like scientific exploration, knowledge production, and knowledge application.

However, we’re not usually aware of how this technology can be leveraged. The universal human right to participate in science and engineering is an idea that is understated and an application that individuals don’t often exercise. Maybe there is a tendency to think or believe that only institutional entities and their direct constituents possess the unique intellectual capacities and practical resources that are required to produce epistemic and technological goods. But buying into this notion–the notion that the means of the production of knowledge is held by an intellectually “elite” few is–firstly, just theoretically flawed–and secondly, in practice, it serves to disproportionately place decision making power and access into the hands of those who are more likely to prioritize their own perceived social or economic growth.

If and when this happens, it follows that the accrual of these abstract “knowledge credits” functions to feed individualistic desires, rather than desires that benefit the whole group. Left unchecked, this compromises the frequency of cooperative engagement with others, novel propositional ideas, and solution focused ventures. In the long run, it undermines the entire scientific enterprise in the sense that the system just perpetuates the inequities and harms that “science” and “technology” are supposed to mitigate. So how do we steer the ship differently?

We’re all part of this problem–regardless of what you think you can or cannot do–
–therefore, we’re all part of minimizing it.

So, in order to solve, what do we need to identify?

What do we need to structurally alter in order to bring about functional change?

Examples could include things of varied dimensions and scales. For example, we could look at problematic psychological phenomena (individual level phenomenon) or “sociopolitical” dynamics (macro or population level phenomenon) that limit access to accredited education systems…

Knowledge Map Visualization | Open Science Projects

“Democratizing Science & Medicine”-Themed Literature

BibBase https://api.zotero.org/users/6447874/collections/RSMZAXH7/items?key=H3htGET3wpaMkrtfDpenhbtf&format=bibtex&limit=100
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  2020 (1)
Elevating the human experience (HX) through service research collaborations: introducing ServCollab. Fisk, R. P.; Alkire (née Nasr), L.; Anderson, L.; Bowen, D. E.; Gruber, T.; Ostrom, A. L.; and Patrício, L. Journal of Service Management, 31(4): 615–635. May 2020. ZSCC: NoCitationData[s0]
Elevating the human experience (HX) through service research collaborations: introducing ServCollab [link]Paper   doi   link   bibtex   abstract  
  2019 (5)
Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot. Greenhalgh, T.; Hinton, L.; Finlay, T.; Macfarlane, A.; Fahy, N.; Clyde, B.; and Chant, A. Health Expectations, 22(4): 785–801. 2019. _eprint: https://onlinelibrary.wiley.com/doi/pdf/10.1111/hex.12888
Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot [link]Paper   doi   link   bibtex   abstract  
Opportunities and Risks for Citizen Science in the Age of Artificial Intelligence. Ceccaroni, L.; Bibby, J.; Roger, E.; Flemons, P.; Michael, K.; Fagan, L.; and Oliver, J. L. Citizen Science: Theory and Practice, 4(1): 29. November 2019. ZSCC: 0000003 Number: 1 Publisher: Ubiquity Press
Opportunities and Risks for Citizen Science in the Age of Artificial Intelligence [link]Paper   doi   link   bibtex   abstract  
Human enhancement through the lens of experimental and speculative neurotechnologies. Teunisse, W.; Youssef, S.; and Schmidt, M. Human Behavior and Emerging Technologies, 1(4): 361–372. October 2019.
Human enhancement through the lens of experimental and speculative neurotechnologies [link]Paper   doi   link   bibtex   abstract  
Entrepreneurship and eudaimonic well-being: Five venues for new science. Ryff, C. D. Journal of Business Venturing, 34(4): 646–663. July 2019. ZSCC: 0000013
Entrepreneurship and eudaimonic well-being: Five venues for new science [link]Paper   doi   link   bibtex   abstract  
Potential Applications of Digital Technology in Assessment, Treatment, and Self-help for Hallucinations. Thomas, N.; Bless, J. J; Alderson-Day, B.; Bell, I. H; Cella, M.; Craig, T.; Delespaul, P.; Hugdahl, K.; Laloyaux, J.; Larøi, F.; Lincoln, T. M; Schlier, B.; Urwyler, P.; van den Berg, D.; and Jardri, R. Schizophrenia Bulletin, 45(Supplement_1): S32–S42. February 2019. ZSCC: NoCitationData[s0]
Potential Applications of Digital Technology in Assessment, Treatment, and Self-help for Hallucinations [link]Paper   doi   link   bibtex  
  2018 (1)
Multidimensional Connectomics and Treatment-Resistant Schizophrenia: Linking Phenotypic Circuits to Targeted Therapeutics. MacKay, M. B.; Paylor, J. W.; Wong, J. T. F.; Winship, I. R.; Baker, G. B.; and Dursun, S. M. Frontiers in Psychiatry, 9. October 2018. ZSCC: 0000006
Multidimensional Connectomics and Treatment-Resistant Schizophrenia: Linking Phenotypic Circuits to Targeted Therapeutics [link]Paper   doi   link   bibtex   abstract  
  2017 (5)
OPEN DATA FOR DISCOVERY SCIENCE. Payne, P. R. O.; Huang, K.; Shah, N. H.; and Tenenbaum, J. Pacific Symposium on Biocomputing. Pacific Symposium on Biocomputing, 22: 649–652. 2017. ZSCC: 0000001
doi   link   bibtex   abstract  
A Systems Approach to Healthcare Innovation Using the MIT Hacking Medicine Model. Gubin, T. A.; Iyer, H. P.; Liew, S. N.; Sarma, A.; Revelos, A.; Ribas, J.; Movassaghi, B.; Chu, Z. M.; Khalid, A. N.; Majmudar, M. D.; and Lee, C. X. Cell Systems, 5(1): 6–10. July 2017. ZSCC: 0000023
doi   link   bibtex   abstract  
Patient-Driven Medical Innovations: Building a Precision Medicine Supply Chain for All. Staff, T. P. C. March 2017. ZSCC: NoCitationData[s0]
Patient-Driven Medical Innovations: Building a Precision Medicine Supply Chain for All [link]Paper   link   bibtex   abstract  
The need for citizen science in the transition to a sustainable peer-to-peer-society. Wildschut, D. Futures, 91: 46–52. August 2017. ZSCC: 0000031
The need for citizen science in the transition to a sustainable peer-to-peer-society [link]Paper   doi   link   bibtex   abstract  
Do-It-Yourself Empowerment as Experienced by Novice Makers with Disabilities. Meissner, J. L.; Vines, J.; McLaughlin, J.; Nappey, T.; Maksimova, J.; and Wright, P. In Proceedings of the 2017 Conference on Designing Interactive Systems - DIS '17, pages 1053–1065, Edinburgh, United Kingdom, 2017. ACM Press
Do-It-Yourself Empowerment as Experienced by Novice Makers with Disabilities [link]Paper   doi   link   bibtex   abstract  
  2016 (2)
Academic Research in the 21st Century: Maintaining Scientific Integrity in a Climate of Perverse Incentives and Hypercompetition. Edwards, M. A.; and Roy, S. Environmental Engineering Science, 34(1): 51–61. September 2016. ZSCC: NoCitationData[s0] Publisher: Mary Ann Liebert, Inc., publishers
Academic Research in the 21st Century: Maintaining Scientific Integrity in a Climate of Perverse Incentives and Hypercompetition [link]Paper   doi   link   bibtex   abstract  
Ethics and Relationship: From Risk Management to Relational Engagement. Birrell, P. J.; and Bruns, C. M. Journal of Counseling & Development, 94(4): 391–397. October 2016. ZSCC: 0000005
Ethics and Relationship: From Risk Management to Relational Engagement [link]Paper   doi   link   bibtex  
  2015 (1)
Perspective: Linking Design Thinking with Innovation Outcomes through Cognitive Bias Reduction. Liedtka, J. Journal of Product Innovation Management, 32(6): 925–938. 2015. ZSCC: 0000519 _eprint: https://onlinelibrary.wiley.com/doi/pdf/10.1111/jpim.12163
Perspective: Linking Design Thinking with Innovation Outcomes through Cognitive Bias Reduction [link]Paper   doi   link   bibtex   abstract  
  2013 (2)
Do-it-yourself biology: challenges and promises for an open science and technology movement. Landrain, T.; Meyer, M.; Perez, A. M.; and Sussan, R. Systems and Synthetic Biology, 7(3): 115–126. September 2013.
Do-it-yourself biology: challenges and promises for an open science and technology movement [link]Paper   doi   link   bibtex   abstract  
The Quantified Self: Fundamental Disruption in Big Data Science and Biological Discovery. Swan, M. Big Data, 1(2): 85–99. June 2013. ZSCC: 0000833
The Quantified Self: Fundamental Disruption in Big Data Science and Biological Discovery [link]Paper   doi   link   bibtex   abstract  
  2012 (3)
Partners & Organizational Supporters \textbar Society for Participatory Medicine. September 2012.
Partners & Organizational Supporters \textbar Society for Participatory Medicine [link]Paper   link   bibtex   abstract  
The Maker Movement. Dougherty, D. Innovations: Technology, Governance, Globalization, 7(3): 11–14. July 2012. ZSCC: 0000491
The Maker Movement [link]Paper   doi   link   bibtex  
Crowdsourced Health Research Studies: An Important Emerging Complement to Clinical Trials in the Public Health Research Ecosystem. Swan, M. Journal of Medical Internet Research, 14(2): e46. 2012. Company: Journal of Medical Internet Research Distributor: Journal of Medical Internet Research Institution: Journal of Medical Internet Research Label: Journal of Medical Internet Research Publisher: JMIR Publications Inc., Toronto, Canada
Crowdsourced Health Research Studies: An Important Emerging Complement to Clinical Trials in the Public Health Research Ecosystem [link]Paper   doi   link   bibtex   abstract  
  2011 (2)
Identifying the Challenges in Community-Based Participatory Research Collaboration. Hotze, T. AMA Journal of Ethics, 13(2): 105–108. February 2011. ZSCC: 0000009 Publisher: American Medical Association
Identifying the Challenges in Community-Based Participatory Research Collaboration [link]Paper   doi   link   bibtex   abstract  
Design for (every)one : co-creation as a bridge between universal design and rehabilitation engineering. De Couvreur, L.; and Goossens, R. CoDesign, 7(2): 107–121. June 2011.
<i>Design for (every)one</i> : co-creation as a bridge between universal design and rehabilitation engineering [link]Paper   doi   link   bibtex   abstract  
  2008 (1)
Why Are Computational Neuroscience and Systems Biology So Separate?. Schutter, E. D. PLOS Computational Biology, 4(5): e1000078. May 2008. ZSCC: 0000102 Publisher: Public Library of Science
Why Are Computational Neuroscience and Systems Biology So Separate? [link]Paper   doi   link   bibtex   abstract  
  undefined (14)
Biohacking Your Brain's Health.
Biohacking Your Brain's Health [link]Paper   link   bibtex   abstract  
The Rise of Citizen Bioscience. Pauwels, E.
The Rise of Citizen Bioscience [link]Paper   link   bibtex   abstract  
NSF Award Search: Award # 2040688 - NSF Convergence Accelerator Track D: Deep Monitoring of the Biome Will Converge Life Sciences, Policy, and Engineering.
NSF Award Search: Award # 2040688 - NSF Convergence Accelerator Track D: Deep Monitoring of the Biome Will Converge Life Sciences, Policy, and Engineering [link]Paper   link   bibtex  
Neighborhood Explorer.
Neighborhood Explorer [link]Paper   link   bibtex  
Schizophrenia Journal Articles - Index.
Schizophrenia Journal Articles - Index [link]Paper   link   bibtex  
Online Resources for Science Laboratories (POD) - Remote Teaching.
Online Resources for Science Laboratories (POD) - Remote Teaching [link]Paper   link   bibtex   abstract  
Four Thieves Vinegar.
Four Thieves Vinegar [link]Paper   link   bibtex  
Curated list of awesome lists \textbar Project-Awesome.org.
Curated list of awesome lists \textbar Project-Awesome.org [link]Paper   link   bibtex  
Find Open Textbooks – BCcampus OpenEd Resources.
Find Open Textbooks – BCcampus OpenEd Resources [link]Paper   link   bibtex  
Open Knowledge Maps - A visual interface to the world's scientific knowledge. Maps, O. K. ZSCC: 0000001
Open Knowledge Maps - A visual interface to the world's scientific knowledge [link]Paper   link   bibtex   abstract  
Biophysics —BIO-PROTOCOL.
Biophysics —BIO-PROTOCOL [link]Paper   link   bibtex  
The BRAIN Initiative and Neuroethics: Enabling and Enhancing Neuroscience Advances for Society: AJOB Neuroscience: Vol 11, No 3.
The BRAIN Initiative and Neuroethics: Enabling and Enhancing Neuroscience Advances for Society: AJOB Neuroscience: Vol 11, No 3 [link]Paper   link   bibtex  
A PHENOMENOLOGICAL LOOK AT THE LIFE HACKING-ENABLED PRACTICES OF INDIVIDUALS WITH MOBILITY AND DEXTERITY IMPAIRMENTS. Robinson, J. ,499. . ZSCC: 0000000
link   bibtex  
What is Citizen Science. Library Catalog: scistarter.org
What is Citizen Science [link]Paper   link   bibtex   abstract  

See Also

Open Science
Open Science MOOC
Open Humans
Citizen Science Association
awesome | Curated list of awesome lists | Digital Tools For Citizen Science
Open Science Grassroots Community Networks
Center for Open Science
Open Science Principles
Epistemic Thinking and Ethics
Intellectual Humility
Institute for Globally Distributed Open Research and Education
Open Educational Resources (OER) Commons
Center For the Advancement of Informal Science Education
Open Science, Medicine, & Engineering Platforms & Communities of Practice

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